A Broken Record

This is starting to get really old. I just spent the worst 2 days so far. So incredibly sick. I feel like such a wimp. I’m so uncomfortable and ill, I am crying most of the time. I even think half the time I’d be better off in the hospital (of course that’s not an option with my pups. . . and I would never leave them).

I couldn’t move last night and could barely think. This morning I was too sick and weak to even make me something to eat. . . not that I could eat much i was so nauseated and all those other things I don’t have to mention again. See, isn’t this sounding like a broken record.

Thankfully Marie came down from Duluth to help. She was wonderful. Laundry, make me something to eat, cleaned up so I could navigate my bedroom again. I was VERY thankful.

So far at 4:11am, I’m feeling a little bit better. Can’t sleep at all and still feel sick, but not like I want to roll over and just die.

One more of these then we see what the next set of chemo drugs does to me. Oh the opportunities in the future. . . I can’t wait (she said sarcastically).

Hopefully, I can get back to just feeling plain sick today (what a goal. . .sheesh).

TTFN

Ups and Downs

Yesterday was another day of infusion. I was completely exhausted before hand as I was up ever 20 minutes going to the bathroom with “the runs”. Not fun! My appointment was at 1:00 which means that I would get out of there till 4pm at the best. Another not optimum situation. Dogs were ok, not great, but good for dogs that have been cooped up with no outlet for so long. I wish the person I contacted to train them on the fence would get back to me. I wonder how people like that stay in business. .. . I also guess that’s why I never let my customers go unanswered unless it’s an absolute emergency.

Anyway, the infusion started off on a sour note. The nurse missed the port, sent me through the roof and we’re off. In the exhausted condition I was in, causing me pain elicited an immediate reaction. . .. a yelp and “you missed it” came out of my mouth. She wiggled it around for a second (again, not a comfortable thing) and it finally sat where it could work. I say could work because it was not the best, it still caused me discomfort as the drugs were being pushed through the vein.

Blood tests taken and waiting for the infusion to start . . .. then I heard “I’ll be right back so we can talk. . . never a good sign. I’ve only been to 2 other infusions, but I know that’s code for “something’s wrong and you won’t be getting a treatment today. Instant tears. I can’t be set back another two weeks. If I was set back, it’s not like I would feel good for two weeks, I would feel like I did the past week for another two and then the chemo would set me even more on my butt once I did get it again.

The nurse cam back and said because of the diarrhea, they don’t feel comfortable giving me the infusion until they know it’s not a bacteria or some kind of infection. Through my tears I pleaded and argued that we’ve been here before and I always come out of it fine. The nurse decided to call the PA who made the decision and we started it all over again. PA said “hospital” several times for both right now and if it were an infection and chemo made it worse and I completely discounted both of those thoughts. She, however, was unrelenting, so I asked to have the decision kicked up the the Doctor.

I waited, and waited and waited and waited. Now i’m over one and one half hours into my treatment time with nothing done yet. Oh well. better that giving up and going home for 2 weeks. Just then the doctor came around the corner to check on me. First words out of my mouth were “i told you you drew the short straw when you got me as a patient”. He smiled and agreed 🙂

He checked me over and made me promise 2 things. 1. I would give them stool samples of my next movement and get them back to the center tomorrow and 2. I would take Imodium. I gladly agreed and the infusion started.

The rest was relatively uneventful. I did have to get a substitute nurse to give me the “red devil”. Funny, they inject this poison right into my veins but a pregnant woman can’t even handle the iv bag. Makes you think. I’m sure in 10+ years there will be better stuff for this.

Toward the end of the treatment, I started to get those damn headaches again. Made me think I was going to get the dizzies like the first time. I asked for a Tylenol and after it was over, I left. I had to pick up Imodium before getting home. Just what I wanted, a trek through Walmart 🙁

Headaches continued and I was wiped out. I got home at 5:30 (because of the delay), and let the dogs out. they were VERY ready to be sprung. They played and played. When 8pm rolled around (my and their bedtime), I just couldn’t put them in kennels, just not fair. I decided to go to sleep on the couch and let them do what they wanted. I woke up about 10:45 and to my surprise, they were all asleep with me. . . except Loki who was just sitting wondering what to do next 🙂

I put them to bed and myself retired. By that time the prednisone had kicked in and I wasn’t too sleepy but I hung in there and in about an hour or so, fell to sleep.

What I forgot to mention is that when I put Fergie in her kennel, I purposefully left her kennel door unlatched. I wanted to see if she noticed and what she would do about it. I came out to go to the bathroom at about 6am and while I was there she pushed the door of her kennel opened every so slightly. She would not come out. Her ears were down with concern, but she did stick her muzzle through the opening staring at me. I gave her encouragement and in about 3 minutes she made her way to me. Still confused, she walked around for a bit then I told her I was going back to bed. I opened the bedroom door and up she jumped on the bed and made herself comfortable . . .PERFECT!!!. I then made a fatal mistake. after a few minutes of petting. I found a huge mat that I had to remove. Out came the scissors, down went Fergie. She was very good exploring. Reinforced that she is capable of being left out unkenneled, but this drove Loki nuts. Oh well. . . he’ll get there sooner or later.

As trained, she had to go out and the doorbell rang. I knew it was important because after the bell rang, she came and stared at me. I guess the day is starting early. Let Fergie out, Let Coco out. . .then let the boys out.. . . and it’s just 6:30. It’s going to be a long day.

Headache is worse, jittery from the pred and starting to feel nauseated. . . and we begin another cycle.

TTFN

Uncle

I knew this wasn’t going to be easy, but honestly, I really feel like giving up and if I go in 10 years from this, so be it. This is really hard. I spend hours shivering with chills that goes into being so overheated I can’t stand being in my skin. Soaking through all my clothes. Then the tired and achy and nauseated. I can’t even keep my eyes opened, never mind do anything close to a normal day’s activities. I was more productive with pneumonia. Nights like tonight make me think that I just want to be in a hospital where I can lay there and do absolutely nothing but rest and sleep (No, I really don’t want that, but . . . ).

Then I cry because it’s so hard.

Then I cry because there are so so many people worse off that I am, I should be ashamed. Buck it up you idiot. It’s not that bad. Get it in perspective.

Perspective, that’s funny. I have a hard time with that one. My perspective right now is very myopic and selfish. I hate that I can’t do anything and I have no energy nor ambition to do anything about it. I have hard water and 160 pounds of salt to put in the softener, but I can’t get it down there. My house smells, but I can’t clean for more that 20 minutes at a time and nothing that involves a lot of bending or walking. Most times not even that.

Then there’s the dogs that I’m not doing right by. (If I even mention them to Mom, she goes off. . . .wants me to give them away . . . for lots of reasons). Fergie is so matted it’s atrocious. I found that Cowboy Magic works, now it’s struggling with her to use it and clean her up and I’m too weak to do that. Loki needs the socialization and right now I can’t handle him in a class setting, again, too weak. This could be life-impacting for him and I can’t do what I need to. (do you think I have a little guilt 🙂 ). Called someone to train them on the fence. . . talk about feeling like a failure that I can’t do it. Can’t even get her to get back to me.

Then there’s always where’s the next mortgage payment coming from. I tell you, if I didn’t have to be around for the dogs for the next 12-15 years, I might have a whole different outlook on this. My kids don’t call from one end of the week to the other. . . Never mind come see me. I have no significant person in my life that gives a rip, I make very little contribution and to be honest, I would likely be forgotten very quickly. I always wanted to make an impact. . . ok another failure. I often think of when I die. I can’t see me being buried. . . .no one to come and visit. I was at my Dad’s plot in CA a few years back and just started to sob because I won’t be next to anyone, and I won’t have anyone to visit. . .. Ok cremation for me.

I just want things to get to where I can be me again. I have no idea who I’ve become, but  I don’t like her very much. I have goals but no ambition. I’m just drowning.

Make it all be over. I hope I can make it though Oct without a complete breakdown and things turnaround quickly after that.

I need to go, this is just rambling now. I can’t see through the tears and I can’t think through the discomfort.

TTFN